Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate, called hyperoxaluria. Claire is on the waiting list for a combined kidney/liver transplant; it is expected that Benson will need one as well. A transplant can cost over $500,000.
They are doing a chariy auction online to help raise money. Seems like a great way to get Christmas shopping done. Hurry! The auction ends November 16th at midnight (I checked it out and they have some really cool stuff - baby hats & headbands, cakes, quilts, purses, Jazz tickets, Wii game, haircut, photo shoot, jewelry, etc).
oh thank you so much for posting this. It just breaks my heart everytime I read their blog and see what that little girl is going through. I couldn't even imagine.
ReplyDeleteLooks like you guys had a good trip besides the car trouble at the beginning. Its always so fun to take off for the weekend.